We wish we knew...
the true dangers of Emily's
Emily was diagnosed with her life threatening peanut allergy in 1995. She
was part of the first wave of kids with food allergies. At the doctor's office, we
were not given any information other than a prescription for an Epipen
and we were told to avoid peanuts. (Huh? Peanuts are everywhere!) We did not know there was a local food allergy support group in Cincinnati,
FAAST. We wish
we knew how just a trace amount of peanut could cause
Recommendation: Do not rely solely on
your allergist for information. Research on-line, read books, join a local or national
support group, and get involved. The website
Kids with Food Allergies, Allergykids,
Allergy Moms are several of the best sites I have seen to support
the family of an allergic child.
NEVER to leave home without
Emily knew she was allergic to peanuts. She was 13 years
old and would never take any risks. At school they would have bake sales, and Emily
would not buy anything since she did not know how the food was prepared. She made
sure waitresses knew about her allergy. She read labels and did NOT take risks.
But no matter how vigilant you think you and your child are, YOU MUST ALWAYS be prepared
for the worse.
Recommendation: NEVER leave home without
an Epipen and prepare an emergency plan and review it regularly.
that anaphylaxis can look like
Emily had eczema at birth, food allergies at two, ADHD
at eight or nine, and asthma at ten or eleven. Many kids with food allergies have
the triple threat of eczema, food allergies, and asthma. The day Emily died the
anaphylaxis looked and felt like asthma. Just like
Sabrina Shannon, Emily was confused and thought she was having an asthma
attack. Emily was alone in the bathroom when the reaction was at it's height...
so Emily would have had to recognize this was NOT asthma. Read more about
When Anaphylaxis Looks Like Asthma.
Recommendation: If your child has asthma
and food allergies be sure you teach your child that anaphylaxis can feel and look
like asthma. If shortly after eating, they begin to have difficulty breathing --
use the Epi -- do not use the inhaler.
that children with peanut allergies
and asthma should avoid soy
Emily had a severe peanut allergy and asthma. We were
never told by our allergist to avoid soy.
We were never told of the dangers of cross reactivity. We have friends with kids with the same allergies and asthma as Emily and their
allergist has told them to strictly avoid soy. There are documented cases where
children like Emily have
died after eating soy, not peanuts. Even the
Mayo Clinic warns of the dangers of soy for severe peanut allergic people
After Emily died, we were contacted by Anne Munoz-Furlong
the head of the largest food allergy non-profit FAAN. Her questions were: Was she
allergic to soy? Did she eat soy products? If
so, any problems with it? Was Emily avoiding soy? Did she ever
have a reaction to soy? No questions about her peanut allergy...
I always thought it interesting. Why such an interest in Emily's history with Soy.
Here is what FAAN says about avoiding soy for peanut allergic children "Unnecessarily
restricting foods can put an individual at risk for dietary deficiencies, and also
carries social and emotional consequences." Why do they conflict with the
Mayo Clinic and Dr. Kayla Daniel? Soy has little nutritional value (there is conflicting
camps on soy's nutritional value, but I tend to believe Dr. Daniel)... what deficiency
would avoiding soy cause?
If your child has peanut allergies and asthma, remove all
soy from their diet. Read
Whole Soy Story
by Dr. Kayla Daniel... warning, it will make you sick
and mad. Remove processed foods from your diet.
the teenage years are the MOST
Emily was a teenager and knew she was dangerously allergic
to peanuts. She read labels, alerted waiters and
waitresses; refused to take chances
with food she was not familiar with, etc. But she had entered her most dangerous
years. It defies logic, because you think since your child is old enough to read
labels and understands their
situation; they are safer than when they were a toddler.
Teenagers start experiencing more of life away from home... and have more opportunities
to get into trouble. Several examples of this dangerous time is the story about
Brenton Schivley (16),
Carley Kohnen (13),
Gina Hunt (14),
Sabrina Shannon (13),
Kareen Bacchus (17), and
Michelle Bray (21). None of these children should have died.
There is a long list of people that have lost their lives from their food allergy,
read it here.
When your child becomes a teenager, do not rest or get into a comfort zone. You
and your child need to be extra vigilant at this time. Their friends need to be
taught the signs of anaphylaxis and how to administer the Epi.
that Cross-Contamination dangers are everywhere
There are no
specific laws requiring
restaurants to have cross contamination training, preventive
measures, testing, etc. You are taking a huge risk every time you eat away from home
or eat food that you did not specifically prepare yourself. Recently, I visited
a Panera Bread and Bruegger's Bagels and both had a jar of peanut butter with a spoon
or knife in close proximity of where they were preparing meals. Look around and study
restaurant that Emily ate at has peanut butter cookies -- we
would NOT have eaten there if we had studied that closer.
Recommendation: Do not eat away from home if you can help it. Pack
a separate meal for your allergic child. NEVER EAT AT A FOOD COURT or BUFFET.
Look at the help behind the counter or in the kitchen, if you would not trust them
with your child's life, do NOT eat there. Print up cards explaining all your child's
allergies and hand the card to your waiter or waitress to take to the head chef.
Do NOT take any chances. Do NOT assume just because you ate at that restaurant without
incident in the past that you will not experience in issue on your next visit. Never
eat away from home without your Epipen. Stay VIGILANT
that the number of Vaccinations doubled since 1991
Emily was born in 1992. It is frightening to learn
now that in 1991 the federal government, with seemingly good intentions, started
a new series of immunizations, for hepatitis-B, to begin on a child's day
of birth!! A year later, the governement added 3
new shots for a potent form of menignitis! After these recommendations, the medical
profession and the pharmaceutical industry began to increase the use of multiple
vaccinations in single injections to save time and money. In addition the government
recommended annual flu shots containing mercury to all children who were six months
or older, and to pregnant women! All of these changes, doubled the number of vaccines
from 11 to 22, all crammed into a child's first 18 months of life. This also crammed
them closer together, increasing the vaccination's toxic burden.
These extra vaccinations gave kids
too much mercury. Even just the three vaccinations given to two-month-old infants
contained 99 times more mercury than the EPA regards as safe. The amount of
mercury given to newborns on their first day of life was 36 times too much. This
has contributed to the many of the epidemics in our children: Autism, ADHD, Asthma,
and Allergies. Could this also be causing the
Gardasil mess affecting thousands of teenage girls??
Recommendation: Read the book
Healing the New Childhood Epidemics of Autism, ADHD, Asthma, and Allergies by Dr.
Kenneth Bock. Read and educate yourself on vaccinations before you
allow your child to receive them. Click here
for another website to reference. Emily was born with eczema on
most of her body, indicating that her immune system was already HYPER-sensitive.
She should not have received the barage of vaccines on the normal "one size fits
all" schedule. She was already TH2 imbalanced -- that should have been brought back
into balance before the vaccines were given -- pushing her immune system into overload!
Read this article about anecdotal information about vaccines role in the
many new childhood epidemics, including food allergies.
Emily's mom had cervical cancer, therefore our
younger daughter may be in a danger class for cervical cancer, but we have commited
that we WILL NOT give her the HPV vaccine (Gardasil). Just Google Gardasil and read
the horrific stories.
we have been eating unlabeled genetically modified foods
Emily was a very fussy baby. Our
lactose free soy milk for Emily when she was a baby. The purple labeled can. Little
did I know, but our food producers have been putting genetically modified soy, corn,
and other foods in baby food, baby milk, and many processed foods. I was asleep
in September 2000 when the Starlink Corn
incident occurred. Hundreds of people had reactions to this corn that was destined
for animal feed, but found it's way into the food supply.
The reactions of the people
consuming this corn were consistent with allergic reactions.
Here's another report
on the incident. Could these new genetically
modified foods, which are introducing new toxins into a new baby's delicate digestive
system, be the cause of the huge spike in food allergies? In addition, these toxins
could be changing the gut flora of adults, therefore causing the spike in adult
food allergies. I have learned of 10 adults that ate peanut butter their whole lives
and just recently became deathly allergic to peanuts. These new toxins can be killing
the good bacteria in our gut causing an imbalance. Check out this explanation of
genetic modification process.
Recommendation: Read books, web articles, and another report on
foods. Borrow and watch
The Future of Food
from your library. Check out these
your diet to as much natural and organic foods as possible. Eliminate as much processed
food from your diet. Remember that genetically modified foods are NOT labeled. Watch
King Corn. Pray
that the Truth about our food comes into the mainstream soon so that we can reverse
all the new epidemics introduced from these UNTESTED foods.
that KRAFT foods was owned by Phillip Morris until Jan 2007
Kraft foods is one
of the largest producers of processed foods that contain genetically modified foods.
They were owned by Phillip Morris... we know we can trust them (?). In Jan 2007,
Altria Group, the new parent company of Phillip Morris (I like how they change names
to hide the past
atrocities) spun off Kraft foods. Kraft foods is also a large funder of the
largest food allergy non-profit. Isn't there a conflict here?
Recommendation: Eliminate Kraft foods from your grocery list. We need to
let them know we don't want their unlabeled GMO processed foods in our children's
bodies any more. Eat organic foods as much as possible. Rid your bodies of the toxins
that have been introduced in these processed foods. Commit to a healthy lifestyle
why a cheap generic version of the Epipen is NOT
Dey Pharmaceuticals, the maker of EpiPens, somehow has been
able to bypass the patent laws or something with the Epipen. Why aren’t there cheaper
generic brands of the epipen available to families and those with food allergies?
If a family does not have medical insurance, an epipen can cost over $100. With
one allergy kid you need many epi’s for school, personal, parent, grandparent, etc.
Epipen’s expire in about 12 months, so it is a continuous expense. If you don’t
regulate the temperature, you can reduce or eliminate the effectiveness of the epipen.
I recently received an e-mail from a mother that does not have insurance; she wanted
to know how to get an epi for her son and wondered how much it cost. It breaks my
heart to think she will need to fork out several hundred dollars to protect her
child. I wonder how many low income families do without the epi?
Recommendation: Ask your allergest and lawyer friends the details behind
what is going on here. I do not know much about patent laws, but Epi's have been
around for 30+ years and there is still pretty much one player in the market. We
need some competition to lower the price for the explosion of families needing multiple
epi's. Please write to me if you know law and patent law to explain this situation